Patient Experience

Patient Experience

National Coagulation Centre marks World Haemophilia Day 2023

3 May, 2023

Pictured L-R: Edel Richards, NCC Staff Nurse, Niamh Larkin, Advanced Nurse Practitioner (ANP) in Haemophilia, Professor Niamh O'Connell, Consultant Haematologist and National Haemophilia Director, and Cathy Bergin, NCC Data Analyst

The National Haemophilia service has been consistently recognised, by teams of international auditors, as one of the worlds’ leading haemophilia services. The successful implementation of ICT solutions has been a key enabler in the improvement in haemophilia services. This year, to mark World Haemophilia Day, the National Coagulation Centre at St James’s Hospital, Dublin launched the Myindici Patient Portal

The aim of the patient portal is to improve self-management for people with bleeding disorders through access to key parts of their EHR, online access to educational resources and a secure messaging system integrated into the EHR.  

Director of the National Coagulation Centre, Prof. Niamh O’Connell, said: “Access to real-time healthcare information is critical to delivering a high quality and safe service for people with bleeding disorders. Empowering people to become partners in their healthcare by facilitating secure access to their own records is a key driver for patient safety, education and timely care delivery.”

The Myindici Patient Portal is a product of the second phase of the Haemophilia Lighthouse Project, funded by eHealth Ireland. Since the beginning of the project in 2016, a new electronic health record for people with bleeding disorders has been implemented and phase two, the launch of the patient portal, is now complete.

For further information about the app here. You can also read more about the National Coagulation Centre webpage here.