Epidermolysis Bullosa

What we do

• Provide a comprehensive range of care to patients & families affected by EB and other skin fragility disorders
• Be patient centred
• Respond to the individual needs of each patient
• Manage the way in which the disorder impacts on the individual affected
• Minimise Complications
• Optimise independent living
• Improve the quality of life of those affected
• Enable a smooth transition from the Paediatric Service in Our Lady’s Children’s Hospital, Crumlin
• Work closely with national & international colleagues

The following specialised multidisciplinary team strives to fulfil these aims

• Three consultant Dermatologists
• EB Liaison Nurse
• Clinical Nutritionist (Dietician)
• Occupational Therapist
• Physiotherapist
• Psychologist
• Social Worker
• Secretary

Contact details

Phone: (01) 428 4151
Fax: (01) 428 4158
Email: ebsecretary@stjames.ie

Postal address:
National service for Aults & Adolescents with EB,
Health Care Centre,
Hospital 5,
St James’s Hospital,
Dublin 8.

Consultants

Referral Procedures

To obtain an appointment with the multi-disciplinary team we require a referral from your GP or Physician, this should be sent to the address above. All referrals must clearly state the patients name, address, date of birth and contact details, as well as a brief summary of the patient’s condition. These referrals will be prioritised and an appointment will be forwarded accordingly.