Sickle Cell and Thalassaemia Service

Haemoglobinopathy Service

What We Do

St James’s Hospital have a dedicated Sickle Cell Disease (SCD) and Thalassaemia Service also known as the Haemoglobinopathy Service lead by Dr.Emma Tuohy.

SCD is an inherited illness which affects the haemoglobin contained in your red blood cells. This can result in a ‘sickle cell crisis.

Thalassaemia is an inherited blood disorder also characterized by abnormal haemoglobin production. Patient symptoms depend on the type and can vary from no symptoms to severe symptoms. Often there is mild to severe anaemia.

We provide a service to all adult patients with a diagnosis of SCD and Thalassaemia who are referred to us by their general practitioner or consultant or through the transition from paediatric care to adult care. Our primary function is to provide specialised medical treatment and to support and advise patients in relation to their physical and social needs. We have a weekly clinic in outpatients and provide daily treatments on the H&H day ward.

We are closely linked with Our Lady’s Children’s Hospital, Crumlin (OLCHC) who offer dedicated paediatric care for children with SCD and Thalassaemia in Ireland. When paediatric patients reach the age of 16-18 years of age their care is transferred to the service in St. James’s Hospital.

Transferring from the paediatric services to the adult services is known as ‘transition’. Each month a transition clinic is held in OLCHC and paediatric patient’s transition to the adult service. This is an opportunity for the patient to meet the multi-disciplinary team in St James’s Hospital. It is also an important step for paediatric patients to start the journey of managing their condition independently as they move into their adult life.

 

Contact Details

Title Name Phone
Consultant Dr Emma Tuohy (01) 410 3597  
Secretary Aoife Finn  (01) 410 3597 
Nurse Specialists Edel and Noel  0879594592
Social Work Anne Winning (01) 416 2218
Physiotherapist Colm Quinn  (01) 428 4557 
Clinical Psychologist  Sharon O'Sullivan (01) 410 3457